Browsing UiS Brage by Author "Hoxmark, Lise Beate"
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Parental experiences with behavioural problems in Smith–Magenis syndrome: The need for syndrome-specific competence
Nag, Heidi Elisabeth; Hoxmark, Lise Beate; Nærland, Terje (Journal article; Peer reviewed, 2019-04)The experience of having a rare disorder was summarised in a large study as ‘falling outside the vast field of knowledge of the professionals’. Parents (31 mothers and 17 fathers) of 32 persons with Smith–Magenis syndrome ...