Blar i Department of Education and Special Education på forfatter "Nag, Heidi Elisabeth"
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Behavioural phenotype of Smith-Magenis Syndrome (SMS) : Individual characteristics and parental and school staff's experiences
Nag, Heidi Elisabeth (PhD thesis UiS;, Doctoral thesis, 2020-11)Smith-Magenis’ syndrom er en sjelden og kompleks genetisk tilstand. Det anslås at rundt 1 av 15.000-25.000 levendefødte barn har diagnosen, og i Norge vet vi om ca 40-50 kjente tilfeller. Denne studien søker å bringe ny ... -
Parental experiences with behavioural problems in Smith–Magenis syndrome: The need for syndrome-specific competence
Nag, Heidi Elisabeth; Hoxmark, Lise Beate; Nærland, Terje (Journal article; Peer reviewed, 2019-04)The experience of having a rare disorder was summarised in a large study as ‘falling outside the vast field of knowledge of the professionals’. Parents (31 mothers and 17 fathers) of 32 persons with Smith–Magenis syndrome ...